Before Birth:

Email-October 31
Hi, well the doctor will induce on the 31st of October as long as the
baby’s lungs are ready! I am still very polyhydraminos and am in pain
with each step. The baby is fairing very well, still extremely active!
Our last bone scan revealed 8 weeks behind dates in limbs. I don’t
know what is normal for achon babies, if someone could tell me or
refer me to a website, I’d be thankful! We are ready, excited, scared
but really wanting the new one to be in our family, here, out of my
belly!! The fluid in his brain is holding at 10mm so that is a good
sign. He finally passed his NST after how many failed?…even through
this is the last one he’ll get before birth…prediction of future
behavior? LOL.

So, I will definately check in after to let everyone know how things
have gone.

Thanks for all your support and help, without you all, I don’t know
what I would have done!

Tonya

Hi all, the Dr suggested that we do the whole amnio for lung
maturity again on Tuesday, tomarrow. Under “normal” circumstances I
would be all for it. I will be 38.6 days Tuesday and if Knoah’s lung
are mature they will induce. OK, so if they DO induce which I am
half way convinced they won’t, but if they do, I am terrified about
what going to happen. I mean if they told me, hey your son will be a
little person and that’s it, I would be like ok. But I think I did a
disservice to myself and have read up on achondroplasia and other
dwarfing disorders WAY TOO MUCH. I am at the point where I am like
well they say it’s this but it looks like this and this, what if
their not telling my he truth. I asked my husband last night about
why they didn’t do any test and he say the geneticst said “why”.
Your too far along now to do an amnio. But they could have done a CT
scan and an MRI, they could have done other tests but didn’t. So
basically, I am freaking out that this is it. I don’t want to give
birth to him if I can’t bring him home and care for him. I don’t
want to give birth to him if his life will be compromised by him
leaving my womb. I want his baby, I want this baby more now than
ever. I admit, when I first found out I was pregoo, I was not happy.
I was pi55ed. Then I started to enjoy the pregnancy and get excited
about having another baby. Then the limb abnormolities started to
make their apperence and I started reading. SO, I know what his
condition looks like and what it doesn’t. I don’t know if I could
handle losing him. I mean I couldn’t handle losing any child. Forget
it, I’ll be a basket case. So, I just want someone to tell me that
he’ll be alright, that I can keep him here with me and love and care
for and raise him. That I’ll have a baby when all is said and done.
I asked God when all this started that if he planned to take the
baby away to do it before he was born. Don’t do it after. 8 weeks
later, Baby Knoah is in here, getting bigger every day. I want to
believe that God will do right that he has a plan that involoves me
to be the mom to three kids. That Knoah has a place in the world,
whatever it maybe. That he being a little person is just another
exciting aspect of he is. I just want my baby.

Sorry so long…. Tonya

After Birth:

want to Thank you to all the moms, dads and grandparents who have
given me guidence the last few weeks! It certainly has been an
eventful near year end!

On Nov 14, I went in for the amnio to be induced if his lungs were
mature, they were so we went up to L and D. They started the process
of induction by using the tablet to to prepare everything at about
1:30pm, I was high and closed/1cm. By 3:30, login little
contractions that were not doing anything, I had to wait to eat
because they wanted to make sure I was not in labor, I wanted to
eat, so I lied….I never eat, after a long discussion back and
forth, I told them to just put me back on the monitor as I am in
labor. They did, I was and and I was 4 cms. They gave me an epidural
and the rest of the night seemed easy. By 5 I was 5-6 cms, by 10 I
was 8 cms, I knew something was amist as I was not progressing as
fast as I should have been. I have fast labors… at midnight the
Perinatologist came in and told them to check me, I was still 8 cms
and in a whole hell of alot of pain. This was not normal, the baby’s
heart rate fell off with each contraction. The pain was more than
even I could handle. After a few minutes he askes if I was to wait
an hour or if I want a c-section. I said, I haven’t progressed
further than 8 cms, I not going to, I can’t do this, I won’t, take
me now. They did an emergency c-section. He came out not crying or
breathing, after a short barter with God, Knoah wimpered. They had
to rescue/resisitate him and his APGAR was 4/8. They took him to the
NICU where he said for two days.

Now the funny part…He is as beautiful as any baby can be. Through
this whole thing I never thought I could hear to words in one pharse
that sounds so…you tell me. His stats were 9lbs 6 ounces, 21.25
inches, they labled him Large for Gestational Age and Achondroplasia.
Large for age, little person. Is it me?

So it ended up that I failed to progress in labor because Knoah’s
noggin was too big and literally got stuck in my pelvis. They
forceped him out during the c-section. As I was pushing during
labor, all I was doing was ensuring he went further against my
pelvis. His little head was so scraped up and bruised from the
ordeal and I found he also bruised his elbow too. The head
ultrasound reveled mild elevation in one ventrical of 7mm, to be re-
scanned again in a week or two and his radiology report isn’t back
yet. But the Dr says the clinical finding do match with Achon.

Know for his physical apparence. Beautiful… His head is large, his
nasal bridge is depressed, he has very mild frontal bossing, his
body length is long and his arms are short as well as his legs. The
nurse told me that she see’s there short but not as badly as she has
seen. He is beautiful, I’ll post a pic in pictures.

Again thanks to all who have helped me! Now the fun begins!!

Tonya and Knoah 4 days old (Achon)