Back in Blonde
Geez oh Petes! Its been forever! My apologies!
Everything has been going pretty well for me lately. My meds have finally “sank in” I guess would be the best way to describe it. The side effects aren’t as bad as they were in the beginning, so that is definately a good thing. So, the physical stuff is okay, just now its the emotional stuff. Like the fact that I am apartment hunting and its just…UGH!! Enough to want to tear my hair out! *breathe*
I realized that I haven’t mention DYNA at all. Dumb me. Dysautonomic Youth Network of America (DYNA) is a great foundation for kids who have, you guessed it, Dysautonomia. I found out about them maybe three years ago from my doctor, and when he told me about them, I started crying because I was so happy to hear that there were kids out there my age who were going some of the same things I was going through. I have been to two of the get togethers, and have made a lot of great friends. The bonds I have with my DYNA friends is different than with my other friends because we share that special connection of having some of the same experiences, and its a great feeling. I love talking to everyone there whether they are my age, a six year old, or even a parent. Seriously, its like hearing your own life story repeated back to you because a lot of us have been through the same crap of doctors thinking we are faking it, our moms are making us sick to get attention, its all in our head, blah blah blah! I haven’t been as involved with the group as I used to be just because I have a lot of other stuff going on, but please, check it out. These people are amazing. www.dynakids.org
I promise I will be more frequent with my postings. If you keep reading, I will keep writing, deal? Also on a closing note, keep the family and friends of those killed at Virginia Tech in your prayers. Such a horrible, senseless thing to have happened…
April 17th, 2007 at 6:37 am
Yup, I keep reading even when you’re not here.
Good to know you have a support group! They’re not just a bunch of people who will nod and say, “I see” once in a while without really understanding. Congrats!
April 17th, 2007 at 9:37 am
Yeah, the understanding/knowing nod is like a life saver sometimes. Except usually they will get me or my mom bawling our eyes out in joy because someone actually understands what we have or are going through.
July 15th, 2007 at 8:41 pm
Bubba,
Good reading and writing (on your part). Good to know that everything we went throught to get you diagnosed and treated has turned into something good for others.
Keep up the Blog and just think how many people you can help.
p.s. got the hint re: the laptop