Pacer Chick

Okay, I don’t know WHAT I ate last night, but I felt like someone shoved a plastic bubble into my belly. I was running down the options in head. Could it be the sandwich I ate? The granola I had? Changing of the seasons? Immaculate conception? Needless to say I had to leave work early and I have spent the entire night and up until now (6:00 pm) in bed in the fetal position.

Its times like that when I actually would prefer to be sick with the heart problem because then at least I know how to get rid of it and know it will go away. But any other kind of sick. No thank you. And I usually don’t get flu sick or anything, which has been a blessing. But when I do, it usually ends up with me in the hospital.

I had to share my glorious night with all of you because it certainly was a blast! Although, I did get to watch “Aqua Teen Hunger Force” the movie. And I know my blog isn’t for movies and all that but…that was the funniest movie I have seen in a long time. Enjoy it when you aren’t sick though, probably a lot better.

Toodle loo for now!

I have said it once and I will say it again…I really don’t like having this heart problem. And I don’t like having a pacemaker really. It would be kinda nice to have a nice “normal” existence sometimes. I get so ticked off when something comes up and people don’t understand it, it really does get me mad, probably worse than it should. I think that and the whole “faking it” thing are up on there on things NOT to say to me about being sick. Hearing that I am making it up from doctors and having to see a shrink because they think either my mom or I are some nut jobs in need of attention. Believe me, we would rather go on Vaudeville to get attention.

And I know the hard part about having this is the fact that it is a “hidden” illness. We don’t have anything that is really noticeable at first, so it makes it hard I think for people really to comprehend that we are sick. I even have trouble with it sometimes! One of my good friends Brett has POTS and, its still very weird for me even to think that he has a heart problem. But…grrr!! Just know, I don’t have an awesome time with this, I hate feeling the pacer go off, I hate not being able to go out in the sun for too long, I hate how I get if its too loud or if the lights flicker even the slightest. I DON’T ENJOY THIS! So please, have understanding for people, it means a lot, believe me.

Thanks for listening to me rant. I need some caffeine.

I really don’t dig the idea that any little tweak to my pacemaker can affect me. The most minor of adjustments can make it seem like I got a whole new system going on or something.

I am trying my best to ignore the pacer going off because it is something I have to deal with for the rest of my life and if I dwell on it all the time….yeah….pretty much going to waste my time.

Anyway, school starts next week and I am very excited for that. Usually when fall starts up it throws me out of whack for a bit, but I will take what I can get right now. I am very ready to get back to school. If any of you out there have dysautonomia, actually, if you have any kind of medical condition, big or small, make sure you talk to your teacher(s) and get some kind of plan going. Its not very nice when something big happens and you forget to tell someone what is going on with you. Let them know ahead of time and they will be understanding, and if they aren’t….have them give me a call and I will give them an earful.

Trying to speed the pacemaker down, should be a fun day. Wish me luck!!

Vacation time tomorrow! Yay! Its even gonna be worth the 8 hour long car trip my mom, two sisters, and I will be making to Illinois for my cousin’s wedding/family reunion. Although, my grandparents informed me yesterday its going to be in the triple digits, so Miss Jess will be enjoying her stay INSIDE.

It will be good though seeing all my family. Its been forever since we’ve all been together, and now we have two new additions! The cousin’s new wife and the first great grandchild.

There will be no passing out on my part, I will avoid that all costs. I about blacked out the other night at my apartment. I walked out of my bathroom and cut my leg on a plastic crate, and me and pain…don’t go very well. So now I have a 6 inch long gash on my leg which will look oh so fabulous with my dress I am wearing for the wedding.

Weddings, wounds, wah wah wah. More after the vacation I am sure!