Beautiful Disaster
I think that describes us kids with Dysautonomia very well if I do say so myself. I used to wonder sometimes what life would be like if I didn’t have this heart problem, and the first word that popped into my head was “BORING” I am sure I would feel better a lot more, but who wants to be normal ya know? I must admit I do get a kick out of people thinking I am joking when I tell them I have a heart problem and a pacemaker. I am usually jumping off the wall and talking my head off in class that my classmates think I am joking. They usually believe me when I show them my stab wound *pacemaker scar* You gotta have some fun with it!
I love writing this blog, especially knowing that it helps people who feel alone out there with this disorder. I think its neat how everyone has their own way of dealing with it. Me, I don’t pay attention to what my doctor says sometimes. Do I have a death wish? No. But, I don’t want to have to stop living my life because of little things. I want to be front row at a concert, I want to ride to the fast roller coasters! (Well, I don’t ride the new ones at Cedar Point because I was told my pacemaker leads could come out and I am not really digging the thought of that)
Don’t ever let something like this control your life. If you have to move around in your seat a lot otherwise you will pass out, do it! If you have to lay down and put your feet up or throw up everywhere, do it! Don’t be self concious when it comes to your health. Yes, people will stare…I mean, we are pretty entertaining right? People care, they aren’t gonna laugh at you. And if they do, smack them. 
Homework for me. And goodnight to you.