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I, as well as other patients of Dr. Grubb received a letter in the mail a week or so ago. The letter was Dr. Grubb explaining that his wife has been diagnosed with a malignant brain tumor and he is taking time away from the office to care for her. Its very sad to hear this because his wife is a very nice lady, and it really does suck to hear that something like this is effecting such a wonderful family.
Please keep Dr. Grubb and his family in your prayers.
You know whats weird to think about? I think about all the stuff I have been through in my life, medically that is, and it blows my mind. It never did before, because it was old news to me, but now its just weird. My NCS and POTS aren’t really a huge deal for my anymore, so that girl who had to be in the hospital all the time, was passing out for no reason all the time, and had to deal with all kinds of medical procedures seems like a different person to me. I am really proud at myself looking at all I have been through and am still here and relatively sane. Not to brag or anything, but I am pretty strong. I need to keep what I have been through in mind when I am feeling overwhelmed or stressed out.
I know at times dealing with this whole mess can be stressful, but everyday you make it through is a thing to be happy about. I don’t know where I would be without my family keeping me going. There were days when I didn’t want to go to the mall with them or out to eat because I was afraid of getting sick. My family were there for me for though and dealt with it and they were the ones who pushed me when I needed it.
Speaking of NCS, POTS, and family, it would be cool if everyone in the Monroe area could get together as kind of a support group of sorts. It would be nice to be able to meet people with dysautonomia who live in the same area. Just an idea…
Yeah, yeah. I know it has been awhile since I have written. I have been busy and hadn’t found anytime to sit and write a blog. I didn’t want to write one that was only a paragraph long talking about the same old stuff over and over again. That even bores ME, and I have to live with it!
No big news on the homefront. I am starting to get more heart burn and acid reflux which is just AWESOME!! I have a friend with POTS who actually had to get dentures because his acid reflux ruined his teeth. I better not be headed in that direction. My family may be hillbillies, but I want my own teeth! I am probably gonna be put on meds for it, because it gets really annoying. Right now my cure is milk and Tums.
I was talking to my friend about all this mess and was telling her I think I really am a 70 year old woman. I have acid reflux, I have a pacemaker, and I love old movies. So…me being 23 is just a joke. I hope I can get some medicare or something…
Okay. Enough for right now. My next blog will be FANTASTIC! I just gotta think of what to write…I should write about how I wish I was Iron Man. I saw that movie a week or so ago, and I want his little glowing thing to be my pacemaker. How cool would that be to have a glowing orb in the middle of your chest instead of a boring little box under your skin? I might have to suggest that when I get mine replaced.
Stay cool! If you have POTS, stay glued to the AC!
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