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The big day is tomorrow! I am excited that its finally here…why I don’t know, but I am!! I am ready for a change here in the U.S. And I am hoping its a good one.
I have been feeling much better this week. Last week was kind of rough with the death of my little cousin and having a cold on top of that, I was pretty much on auto-pilot for most of the week. But, made it through in one piece.
I hope everyone goes to the polls tomorrow and exercises their right to vote…FOR OBAMA!!!!!
I got a call from my mom last night informing me that my 3 year old cousin Ceridwen died last night. She had been sick for a long time. She was such a strong little girl and fought very hard and she was truly an inspiring little girl. They live in Oregon, so it makes it even worse because I can’t be out there with them. I just talked to her mom on Saturday and everything was fine…
Please keep her, her mom and dad, and the rest of our family in your prayers.
Yeah, yeah I know its been forever since I have written. Just haven’t had a chance to, my apologies yet again.
So…I had the pleasure of going to the Micky Dolenz concert on Saturday. (Front row center, I rule.) And…I think the words to describe my night would be “The Most Amazing Thing EVER!!!!!” I just got to live out one of my childhood dreams…Micky put the microphone down to me and I sang a verse of the song “Goin’ Down” He threw his towel at me (the one he said he was going to put on eBay…yep, I have it.) Then a bunch of girls ran on stage (me too, of course) and we got to sing and dance to “I’m a Believer.” I got to sing back-up with his sister Coco which was just…oh…AWESOME!!!!
To link this to my blog, I almost passed out on stage. That would have been just dandy. I was really hungry before the concert and I think that coupled with the excitement was just not so good. But, thank GOD I didn’t pass out. I got some pretzels and Pepsi and ate those while waiting in line to get an autograph from Micky. He signed my Monkees album, the same one Peter Tork signed….so I am oh so very cool now. Thank goodness for whoever was watching over me that I didn’t pass out on stage *whew*
Umm…other updates besides my AWESOME night. I have a cold, which sucks. Stuffy nose, scratchy throat, watering eyes, the whole works. So, I feel like I have been hit by a bus and that coupled with class is not a happy experience. It will go away though, and not like I haven’t been sicker than this before!
I went to get the pacemaker checked a month ago or so and found out that my old lead is taking a lot of energy to work. Its been in there for 11+ years so its understandable. He said that its not something to worry about right now, just going to keep an eye on it until we need to go in there and get that one out of there. It has been something that has been in the back of our minds though, but as long as its not some life threatening deal, not gonna worry too much.
Alright…going to pay attention in class now. I promise I will write more. Farewell!!
By the way…I sang with Micky Dolenz of the Monkees. HA!!
Apparently my sister thinks that by willing your heart problem away, your problem is solved. Huh…interesting. Hasn’t worked for me for 23 years, so doubt its going to work anytime soon.
I have been having problems ever since I went to the pacemaker checkup. My pacemaker has been going off and my heart has been racing like I am a long distance runner or something! So, tomorrow I am going on a little trip to Perrysburg and getting a tune up. Lovely thing to do to start off the day! Oh well, I need it taken care of because its driving me nuts.
I am enjoying school more. I have been very talkative in my classes (shocking, huh?) My first three classes are literature so we are always analyzing and talking about what we read, and that is fun. I have met some nice and interesting people as well. September has just been a month of getting used to school and work again. October on the other hand I am looking forward to VERY much!! On October 3rd, my new boyfriend Michael Cera’s movie is opening so my best friend and I are going to see it. On the 4th, going to see a Buster Keaton movie in Redford. On the 5th, going to see a Harold Lloyd movie in Ann Arbor. On the 15th, going to see Cobra Starship in Detroit, and on the 25th, seeing Micky Dolenz at the Community College. If I thought I was worn out now…just wait! But I am super excited, so who cares?!
I should be paying attention to class right now, but its boring and its hot in here and I am hungry, so I don’t really care…
Okay, I guess I should be a good student. Farewell!
Back to school for me, and man…its slowly killing me! I usually get something wrong with me when school starts. Its hard to get back into the schedule of work, school, work, school. But clearly I am surviving it because I am writing this blog.
I am pretty sure my pacemaker wasn’t messed with at my last doctor appointment, but it seems like it is super sensitive. At work it was just going BOOM BOOM for some reason. (It doesn’t really make that sound, thats just what it feels like in my chest, fun huh?) And then last night when I was sleeping, it woke me up because my heart was racing. So, I don’t know what is going on there. I hope its not like how it was before when my heart kept racing, because I had to get an ablation…and that is NOT happening again. Maybe he did mess with it because he knows he gets on my nerves. Conspiracy maybe?
I was talking to someone I work with the other day, just explaining to her a bit of my heart problem and she said something to me that I hear a lot. “You seem to have a positive attitude considering all you have been through.” I remember growing up, I wanted to be THAT kind of person. The person that stays positive and just doesn’t become totally consumed by being sick and I thought I never would be that way. And its kinda funny to think that I am that way, and I don’t even really try for it. I mean, I am used to this because I have had it all my life, so I don’t really know how else to behave. Its nice to know I am not defined by NCS, POTS, or a pacemaker…at least, I don’t think so. When I think about what makes me ME, I know I have to include the pacemaker and everything because it does make me special….but I love old movies, I love to read, I love to have fun and laugh and that should define me more than just being the girl who passes out.
I feel uplifted now. Off to school…hope your school years are going well!
How come whenever I get sick or some kind of ailment its ten times worse than it needs to be? I get a cold or the flu, and I end up in the hospital with an IV in my arm because I am dehydrated. And now, I have poison ivy taking over me! I had it just on my left ankle at first. Now its on my ankle, thigh on my left leg, my right hand, and on my neck. I have stuff to put on it, but that stuff BURNS!! I had a bad outbreak of poison ivy about seven or eight years ago and ended up having to get a steroid shot because it was all up my left side. Better not happen again!! I think I got it at Vince’s hot dog stand…grrr!!!
I had a friend who got mad at me once because she said people paid for attention to me when I was sick because I have a heart condition and no one pays attention to her when she is sick. After cracking up and what an idiotic thing that was to say, I thought about it, and I guess its true. But its not like its something to be proud of! Who knows…I am just a walking mess I suppose.
*yawn* Tired and itchy!! Ugh!!!
I will admit that I am not going to the fair unless I have a solid reason. Sorry. But I am not the type of person who digs walking around in the heat for no reason. I do like to sneak over there with my co-workers and grab some lunch though. We are conveniently located across from the fairgrounds, I think just so that I can grab a corn dog or two. BUT I will be there Thursday night at the Monroe Evening News booth. They will be having a “Meet the Bloggers” shindig going on, and I will be making a guest appearance. I would love if you stopped and said hello. Don’t be to shocked if I have a corn dog shoved in my mouth though…I love those things. In all seriousness though, I think it will be fun. I hope I can meet some of the other people in Monroe who pass out like me and even the fellow bloggers who I rarely have time to talk to. (Sorry!) So, like I said, whether you faint or not, you can still come say hello to me.
I walked about four miles this morning. I should give myself a round of applause for that. I am weening off the pop…again. I just want to get this weight off that I gained when I was taking Lexapro. That is another bad thing about having a health condition like this. The only real “cure” is medicine, which can be a pain to figure out which one or which ones work best. So hopefully this working out and cutting out the pop can help me get back to normal because I am not digging this Michelin Man Jessica deal that I have going on. And, as my grandma says, its not just for vanity reasons, but for health reasons too. I mean, I already have the bum ticker and the pacemaker, I don’t really need any other health anomalies. Not right now at least.
Alright. Off to home now. No idea what I am doing today. I think I will watch “21,” since I got it from work. Although its probably not a good idea since Jim Sturgess will send my pacemaker into overdrive. Way hott.
Ciao!
So, I guess its been awhile since I have been sick. My vacation time is up. Yesterday and continuing into today I have had a horrid headache. And just feeling like I was on the verge of passing out. Boy oh boy do I miss having this feeling…SIKE! I was telling my grandma I was just waiting for the angels to take me, she told me I was being overdramatic. Which, yes I was, but ugh, that sick feeling is just horrible.
Hope all my other dysautonomics have been feeling okay during the summer. It really hasn’t been bad, weather wise that is. Not too hot. Its actually really nice today. Lucky us!
Alright, back to watching “Some Like It Hot.” My head is still hurting. 
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I, as well as other patients of Dr. Grubb received a letter in the mail a week or so ago. The letter was Dr. Grubb explaining that his wife has been diagnosed with a malignant brain tumor and he is taking time away from the office to care for her. Its very sad to hear this because his wife is a very nice lady, and it really does suck to hear that something like this is effecting such a wonderful family.
Please keep Dr. Grubb and his family in your prayers.
You know whats weird to think about? I think about all the stuff I have been through in my life, medically that is, and it blows my mind. It never did before, because it was old news to me, but now its just weird. My NCS and POTS aren’t really a huge deal for my anymore, so that girl who had to be in the hospital all the time, was passing out for no reason all the time, and had to deal with all kinds of medical procedures seems like a different person to me. I am really proud at myself looking at all I have been through and am still here and relatively sane. Not to brag or anything, but I am pretty strong. I need to keep what I have been through in mind when I am feeling overwhelmed or stressed out.
I know at times dealing with this whole mess can be stressful, but everyday you make it through is a thing to be happy about. I don’t know where I would be without my family keeping me going. There were days when I didn’t want to go to the mall with them or out to eat because I was afraid of getting sick. My family were there for me for though and dealt with it and they were the ones who pushed me when I needed it.
Speaking of NCS, POTS, and family, it would be cool if everyone in the Monroe area could get together as kind of a support group of sorts. It would be nice to be able to meet people with dysautonomia who live in the same area. Just an idea…
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